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WELCOME TO EGORD

EGYPTIAN GROUP FOR ORPHAN RENAL DISEASES

“RARE KIDNEY DISEASES ADVOCATE” GROUP DEDICATED TO PROMOTING AWARENESS AND ENHANCING CARE OF RARE KIDNEY DISEASES IN EGYPT AND BEYOND.

المجموعة المصرية لامراض الكلى النادرة

مجموعة صحية  مكرسة لتعزيز رعاية أمراض الكلى النادرة و التغلب على العقبات التي تواجه سبل رعايتها من منطلق طبي واجتماعي وأخلاقى لتلبية احتياجات المرضى وأسرهم مع كامل الحق بالعلاج اسوة بالمرضى المصابين بالامراض الشائعة.

VISION

To develop a platform for the commonly overlooked rare kidney diseases to enhance the understanding of :spectrum of these diseases, their epidemiology and  genetic background through fostering clinical collaboration, translational research and patient-informed practice.

MISSION

To provide a hub for health care professionals, patients & families, researchers to better understand rare and genetic kidney diseases, exchange expertise and find practical support.

STRATEGY

Enhancing the profile of rare kidney diseases through programs of Awareness, Support, Education, Research and Advocacy.

 

 

 

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